Mandy Young

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Do you ever get phantom pains?

Posted by Mandy Young on February 28, 2016 at 6:55 PM

Before I answer this question I'll answer another question first that some of you might be asking yourself. What is a phantom pain? Well according to Wikipedia is "Phantom limb pain is the feeling of pain in an absent limb or a portion of a limb." It's basically when nerve endings have been cut and then they try to grow back together but they can't. Studies show that phantom pains are more frequent right after amputation and go away in most cases, but everyone is different.

 

Now let's talk about MY phantom pains. Do I get them? YES! Some I can deal with and some are so bad I can't even talk through them. It's so hard to describe to someone what they feel like because it's an awful pain but where you would think the pain would be (mine feel like they would be in my back upper thigh) but there is nothing there! And unlike most cases mine have gotten worse over the years. I didn't really get them that often when I was younger but now I get them almost weekly. I even had one a few years ago that lasted for 3 days. It was so painful I couldn't even sleep. There is a preventative medicine that you can take but I'm not getting them strong enough or often enough to get put on meds for it.

 

There are three things I can do to help when I get a phantom pain. 1. Just breathe. Sometimes the pain gets so bad I forget to breathe or I just want to hold my breath but that's not helpful. So kind of like having labor pain you just have to breathe through it. 2. I can shake my wound (my amputation site). Sounds weird I know but honestly sometimes it does help. 3. During the 3 day phantom pain I tried to find home remedies of how to get rid of one. I found this and even though I still think it's crazy it does work. A lot of the time a phantom pain is a mind game. My brain still thinks that my leg is there. So while having one I have to figure out if I had a leg where would this pain be coming from and then I have to act like I'm massaging the area of where that pain would be. YES I KNOW, it sounds crazy and I thought it was too but when you are desperate you're willing the try anything and honestly that normally does stop it or at least eases it.

So do you have any questions for me?  I'd love to hear them!  

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